Comments on: How long a person living with multiple myeloma? http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/ health information Fri, 05 Aug 2011 06:35:45 +0000 hourly 1 http://wordpress.org/?v=3.3 By: jewells_40 http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250360 jewells_40 Mon, 19 Jul 2010 09:45:12 +0000 http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250360 Hi, First thing is to NOT listen to most of what is on the web (and some posted here). MM has had a couple fo GREAT breakthrough treatments in the last year (Velcade and Revelamid) that have really helped. Plus better use of Thal/Dex, SCT and biophspahtes. I know patients that are in year 10 and even 15 after diag. Keep a postitive attitude, it is a tough diagnosis but you can LIVE ! with MM As far as individual survival; that is a very complicated question: depndes on age, progression at diagnosis, and some genetic factors (like cromozone 13) and which "type" of Myeloma you have. Biggest thing I can think of to help with the survival is to make sure your are seeing someone that specialises in MM - not just cancer. The information is changing almost every day; so you need a doc in thyour courner that has thealstest information. Also, KNOW your cancer - learn everything you can, so you can make the best decisions you can. Make sure you have a doc that you can communicate with and understands you needs and issues. Good luck Jewells 33 months and still here Hi,

First thing is to NOT listen to most of what is on the web (and some posted here). MM has had a couple fo GREAT breakthrough treatments in the last year (Velcade and Revelamid) that have really helped. Plus better use of Thal/Dex, SCT and biophspahtes.

I know patients that are in year 10 and even 15 after diag. Keep a postitive attitude, it is a tough diagnosis but you can LIVE ! with MM

As far as individual survival; that is a very complicated question: depndes on age, progression at diagnosis, and some genetic factors (like cromozone 13) and which “type” of Myeloma you have.

Biggest thing I can think of to help with the survival is to make sure your are seeing someone that specialises in MM – not just cancer. The information is changing almost every day; so you need a doc in thyour courner that has thealstest information.

Also, KNOW your cancer – learn everything you can, so you can make the best decisions you can. Make sure you have a doc that you can communicate with and understands you needs and issues.

Good luck

Jewells
33 months and still here

]]> By: copestir http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250359 copestir Mon, 19 Jul 2010 09:31:35 +0000 http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250359 No one can really answeer that it depend on how well you respond to treatment and the overall health condition No one can really answeer that it depend on how well you respond to treatment and the overall health condition

]]> By: Future ER Doc http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250358 Future ER Doc Mon, 19 Jul 2010 09:22:02 +0000 http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250358 "The International Staging System can help to predict survival, with a median survival of 62 months for stage 1 disease, 45 months for stage 2 disease, and 29 months for stage 3 disease." “The International Staging System can help to predict survival, with a median survival of 62 months for stage 1 disease, 45 months for stage 2 disease, and 29 months for stage 3 disease.”

]]> By: Erika S http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250357 Erika S Mon, 19 Jul 2010 09:03:22 +0000 http://www.sey7.com/20100719/how-long-a-person-living-with-multiple-myeloma/#comment-250357 This is really a question to be asking the doctor of the person diagnosed with the condition. How long a person can live depends on where the tumors are, how fast they are spreading, and how they are affecting the patient--if they are affecting kidney functionality, the patient may have to go on dialysis. Check out the website in my sources, it has more information on exactly this subject than I could possibly include here. This is really a question to be asking the doctor of the person diagnosed with the condition.

How long a person can live depends on where the tumors are, how fast they are spreading, and how they are affecting the patient–if they are affecting kidney functionality, the patient may have to go on dialysis.

Check out the website in my sources, it has more information on exactly this subject than I could possibly include here.

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