First thing is to NOT listen to most of what is on the web (and some posted here). MM has had a couple fo GREAT breakthrough treatments in the last year (Velcade and Revelamid) that have really helped. Plus better use of Thal/Dex, SCT and biophspahtes.
I know patients that are in year 10 and even 15 after diag. Keep a postitive attitude, it is a tough diagnosis but you can LIVE ! with MM
As far as individual survival; that is a very complicated question: depndes on age, progression at diagnosis, and some genetic factors (like cromozone 13) and which “type” of Myeloma you have.
Biggest thing I can think of to help with the survival is to make sure your are seeing someone that specialises in MM – not just cancer. The information is changing almost every day; so you need a doc in thyour courner that has thealstest information.
Also, KNOW your cancer – learn everything you can, so you can make the best decisions you can. Make sure you have a doc that you can communicate with and understands you needs and issues.
“The International Staging System can help to predict survival, with a median survival of 62 months for stage 1 disease, 45 months for stage 2 disease, and 29 months for stage 3 disease.”
This is really a question to be asking the doctor of the person diagnosed with the condition.
How long a person can live depends on where the tumors are, how fast they are spreading, and how they are affecting the patient–if they are affecting kidney functionality, the patient may have to go on dialysis.
Check out the website in my sources, it has more information on exactly this subject than I could possibly include here.
Hi,
First thing is to NOT listen to most of what is on the web (and some posted here). MM has had a couple fo GREAT breakthrough treatments in the last year (Velcade and Revelamid) that have really helped. Plus better use of Thal/Dex, SCT and biophspahtes.
I know patients that are in year 10 and even 15 after diag. Keep a postitive attitude, it is a tough diagnosis but you can LIVE ! with MM
As far as individual survival; that is a very complicated question: depndes on age, progression at diagnosis, and some genetic factors (like cromozone 13) and which “type” of Myeloma you have.
Biggest thing I can think of to help with the survival is to make sure your are seeing someone that specialises in MM – not just cancer. The information is changing almost every day; so you need a doc in thyour courner that has thealstest information.
Also, KNOW your cancer – learn everything you can, so you can make the best decisions you can. Make sure you have a doc that you can communicate with and understands you needs and issues.
Good luck
Jewells
33 months and still here