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What is the life expectancy of a man w / multiple myeloma?
My father was w / MM diagnosed at 48 with 1200th Bence-Jones protein The first chemo treament almost killed him. Its easy to blood clots and the port was postponed twice because of blood clots. He suffered mild heart attack. He has been on thalidomide for 2yrs! Now, BJP 700 level in 52 years. old and no thalidomide. The Dr. ‘s waiting BJP-level to 1000 to achieve for the chemo. Many of kidney trouble and BP. Anyone with experience with this?
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#2 written by jewells_40 1 year ago
Hi,
Sounds like he is doing ok right now – does he have any mono protein elevation? Unusual MM to have BJP and not a lot of IG? involvement.
Two good sources for information:
http://www.myeloma.org (they also have a hot line)
and
http://www.multiplemyeloma.org
you cna get a lot of information there.
As far as your questions; life expectancy depends on a very complicted set of variables – MM is tough to “stage”.
some people can live for 20 years and others die within 3. Fact he is off thal (look into velcade – lot less side effects), it’s been 4 years and his BJP is still under 1000 shows he is doing OK.
Good luck,
jewells
29 months and still here - Comment Feed for this Post
Get him glyconutrients.